tag:blogger.com,1999:blog-450190796935126159.comments2023-06-26T02:00:10.690-07:00GabrielleRegan Rosshttp://www.blogger.com/profile/07974050446433040443noreply@blogger.comBlogger770125tag:blogger.com,1999:blog-450190796935126159.post-324597962767839892022-11-16T13:35:29.780-08:002022-11-16T13:35:29.780-08:00Dear anonymous, My heart breaks in reading your wo...Dear anonymous, My heart breaks in reading your words, I remember every single detail of diagnosis day. The pain is indescribable and your baby girl is going to change your life forever in ways you never imagined. I definetly recommend making sure you have good support and even a good counsellor to help you process your deep pain and grief as this journey will require so much. Love and hugs. Amy Rosshttps://www.blogger.com/profile/16115127555630876983noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-41052917402783383272022-07-01T04:35:22.875-07:002022-07-01T04:35:22.875-07:00My daughter was diagnosed with icell couple of mon...My daughter was diagnosed with icell couple of months ago. She is my only child. Even though I knew something was wrong, this day, the day we got her diagnosis from the geneticist , it was the last pain free day of my life. Probably it was the last day of my life in general. I don’t think I will ever manage to be happy again even for a single minute. Your stories make me cry... Thank you Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-21111998679293036652022-02-04T13:00:43.764-08:002022-02-04T13:00:43.764-08:00Amy I am the nana of Reese who is almost 9. I saw ...Amy I am the nana of Reese who is almost 9. I saw the beautiful photo that was posted today of Gabrielle and looked a little deeper as we do sometimes. Sort of a Support Group kind of day. I was struck with your comment about Gabrielle waking something inside of you. I took a screenshot to read snd re read as it spoke to me as we “live” in the grief before the grief. I’m going to read your blog and thanks for sharing. You never know how the words you write will impact someone. I noticed the date of Gabrielle passing and it appears to be around the date Reese was 3 mo and still in the hospital….pre diagnosis. They thought she had a heart condition. I call it the glory days of heart disease when there was still hope. Please take care.cynthia helisekhttps://www.blogger.com/profile/16651659345594347542noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-71810521724199065622016-06-12T20:59:56.315-07:002016-06-12T20:59:56.315-07:00Thank you Antonella. You and Julian will always h...Thank you Antonella. You and Julian will always hold a special place in my heart as well. The bond we share both mothering our terminally ill children will be a lifelong bond. xoAmy Rosshttps://www.blogger.com/profile/16115127555630876983noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-61963518178318330072016-06-06T19:48:29.712-07:002016-06-06T19:48:29.712-07:00Oh my goodness...thank you so much for sharing you...Oh my goodness...thank you so much for sharing your comments. My heart is overflowing with love...I am so sorry about the loss of your son and congratulations on the birth of your daughter. Please keep in touch. Ireland is on our list of places to go and visit. xoxoAmy Rosshttps://www.blogger.com/profile/16115127555630876983noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-89491821369657966752016-06-04T11:59:18.674-07:002016-06-04T11:59:18.674-07:00Our son was born with I Cell in April 2012. We qu...Our son was born with I Cell in April 2012. We quickly found this blog. It was a fantastic resource for us and would look forward to any updates. In fact, it was our first port of call when surfing the net.<br /><br />Our son passed away in August 2015. We talk about him daily. He was the center of our daily existence. Life was very tough on us all, but we still fondly remember our struggles together.<br /><br />His sister was born in May this year. She is I Cell free. Her middle name is Mae, due to the month she was born in but also in part to this blog where we first came across the name.<br /><br />We frequently visit this blog, I would imagine that many new I Cell families will value it as much as we have.<br /><br />All the best, <br />Irish I Cell family.Anonymoushttps://www.blogger.com/profile/06934097666588519186noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-61504255926843150762016-05-06T04:54:00.213-07:002016-05-06T04:54:00.213-07:00This brought a tear to my eye. You always manage t...This brought a tear to my eye. You always manage to express how I feel but can't put into words. I see Julian in all of nature's beauty as well. Gabrielle will always hold a special place in my heart. Big hugs, AntonellaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-712120486832079662016-05-05T12:21:11.274-07:002016-05-05T12:21:11.274-07:00OMG what a wonderful reflection. More often than I...OMG what a wonderful reflection. More often than I'd like, I miss the little delights for a world of tasks and responsibilities. Thanks for the reminder. I miss Gabrielle's smiling little face and her gentle, piercing eyes. xoxoDavidhttps://www.blogger.com/profile/08989154725443752065noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-89342222192202502772016-05-04T23:25:36.118-07:002016-05-04T23:25:36.118-07:00This comment has been removed by a blog administrator.michelle b @ every little thing inspiredhttps://www.blogger.com/profile/00123685704727488956noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-20169022061030637632016-05-04T23:25:28.601-07:002016-05-04T23:25:28.601-07:00Beautiful as always. XoBeautiful as always. Xomichelle b @ every little thing inspiredhttps://www.blogger.com/profile/00123685704727488956noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-27147879223101703332015-11-16T18:11:05.955-08:002015-11-16T18:11:05.955-08:00I'm so happy you found us and you chose an inc...I'm so happy you found us and you chose an incredibly rewarding profession. All the best to you. Amy Rosshttps://www.blogger.com/profile/16115127555630876983noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-41094275712554047132015-10-29T18:31:13.540-07:002015-10-29T18:31:13.540-07:00Ross family,
I am a current medical student in Te...Ross family,<br /><br />I am a current medical student in Texas, and we recently learned about I-cell disease in our biochemistry course. I started doing some web searching about the disorder and found your blog. I just wanted to say thank you so much for sharing your story. It is easy in school, with all the different things we are learning, to focus on disease and all the medical facts surrounding it. Sometimes, we lose sight of the real patient and the family behind all of that. That is what really matters. Your blog really helped put things into perspective again for me and reminded me why I want to go into this profession. Gabrielle is such a beautiful angel. Thank you for sharing her, and your story, with the world. Roshttps://www.blogger.com/profile/05260101285217158065noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-35256194787356957262015-03-24T12:50:54.703-07:002015-03-24T12:50:54.703-07:00Just sended my request for the facebookgroup... Se...Just sended my request for the facebookgroup... See u there :-) Anonymoushttps://www.blogger.com/profile/15156951238103409109noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-54077767498896535412015-03-24T05:59:11.459-07:002015-03-24T05:59:11.459-07:00I'm so happy Gabrielle's blog has been mea...I'm so happy Gabrielle's blog has been meaningful to you. Please try to find the Support Group for I-Cell Disease on FacebookReganhttps://www.blogger.com/profile/06675094530044514087noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-52466111158207310352015-03-22T15:02:42.118-07:002015-03-22T15:02:42.118-07:00Hello dearest family Ross! Is can't stop Readi...Hello dearest family Ross! Is can't stop Reading this inspiering blog!!!! We are olso blesses with a beautifull girl with i-cell... She celebrated her first birthday this mounth :-) <br />I was Hoping to get in contact with you are other i-cell families... Can you help us with that? I saidly red that Gabielle is a inspiering angel now! Wishing you and your family and ofcourse olso your lillte girl all the best in every way. Lots of love from Belgium (forgive me for my written Englisch, it's not my best) Anonymoushttps://www.blogger.com/profile/15156951238103409109noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-4810865752793202942015-03-19T10:41:54.090-07:002015-03-19T10:41:54.090-07:00This comment has been removed by the author.Amy Rosshttps://www.blogger.com/profile/16115127555630876983noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-14912883361583983752015-03-19T05:00:35.528-07:002015-03-19T05:00:35.528-07:00What a beautifull family! I'm Reading in tear...What a beautifull family! I'm Reading in tears... Our dauther Maartje just had been diagnosed with i-cell. She is just 1 year and looks sooo mutch like your sweet gabrielle!!!! Love u allAnonymoushttps://www.blogger.com/profile/15156951238103409109noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-67664342172040373942015-02-17T23:24:16.302-08:002015-02-17T23:24:16.302-08:00As you and Gabrielle continue to inspire people ar...As you and Gabrielle continue to inspire people around you!Anitahttps://www.blogger.com/profile/04236091025324072393noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-59787349262455652492014-09-08T09:40:15.959-07:002014-09-08T09:40:15.959-07:00So proud of you James. You are giving to other fam...So proud of you James. You are giving to other families that need your help. Gabrielle will be smiling!Davidhttps://www.blogger.com/profile/08989154725443752065noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-50907821886507021512014-07-10T18:37:14.064-07:002014-07-10T18:37:14.064-07:00I never got to meet Gabby face to face, and it has...I never got to meet Gabby face to face, and it has been 20 years (!!!) since I last saw Regan, but she has touched me incredibly. I found this blog on a Sunday in May, 2011, just a few months pregnant with my now 2 and a half year old. It became my weekend ritual to visit this site and spend some time with your family and Gabby. I often cried and then smiled, laughed, then cried some more. I prayed for her, thought about her and I learned a most valuable lesson- every day is a blessing. We never know what may happen tomorrow, so live in the now and just cherish it. This moment is all we are guaranteed.<br /><br /> I remember videos and pictures of Gabby and what always struck me was that she always looked so strong. And just wise beyond her years. Like she knew exactly why she was here and what she was teaching so many. I love how her brothers loved her and played with her. She was truly the little princess :) <br /><br />I cannot thank you enough for sharing her life with me. She was SO lucky to have you as her family. She chose you for a reason :)Anonymoushttps://www.blogger.com/profile/17147787115471204028noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-57796804275046412992014-06-23T13:30:22.555-07:002014-06-23T13:30:22.555-07:00Regan, thank you so much for giving me a glimpse o...Regan, thank you so much for giving me a glimpse of your beautiful, amazing daughter, and your family and friends. Her gentle and fun-loving spirit shines from these videos and photographs. It is a privilege to play peek-a-boo with her, wherever her strong spirit resides. I was so touched by your Mom and Dad's post about her signs, and the ways she continues to speak to you. All the best.Fionanoreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-11257144207483181022014-06-21T21:22:03.108-07:002014-06-21T21:22:03.108-07:00May her memory be a blessing. The moon went comple...May her memory be a blessing. The moon went completely dark the night she passed. Gabrielle passed just before a new moon occurred. I hope the family finds strength and is renewed to their full brightness just like the heavenly moon does each month.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-13063242697624562142014-06-11T19:43:55.741-07:002014-06-11T19:43:55.741-07:00Today is Gabrielle's "Angel Day" and...Today is Gabrielle's "Angel Day" and I just wanted to share something withyou both.<br />When we had Gabby's Celebration of Life, we had one of the Councillors ,Joanne Charles, from the Semiahmoo First Nation do a prayer and a blessing.<br />At the end, she said to Amy and Regan, 'look for signs in nature- Gabrielle<br />will let you know that she is there.'<br />The next day, we were all at the soccer field watching the boys play. Atone point everyone started looking into the sky. Overhead was a Sundog. I<br />have never before seen one. It is a weird atmospheric event where the sun is<br />reflected somehow in the atmosphere and creates a ring of suns in the sky.<br />To top it off, there was an eagle right in the centre that was spiralling<br />upwards - carrying Gabby to heaven.<br />Fast forward to yesterday. Julie was driving home from Anna's balltournament and saw the second Sundog of her life in the sky. People were<br />phoning the radio station she was listening to to ask what was going on - so<br />I guess we weren't the only ones who hadn't seen one before. Julie phoned<br />Amy , and they agreed to meet later on the beach to take the kids for some<br />ice cream. There was a new shop that had ice cream on the waterfront so they<br />decided to give it a try. <br />The shop had ice cream on one side and Indian artifacts and art on theother side. It was a nice little place and they wanted to know the name of<br />it for future reference. On the way out, they checked out the name . It was<br />called "Heavenly Angel".<br />Gabby is still sending signs. Love Mom and DadJanehttps://www.blogger.com/profile/14548474012170559024noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-29657785300603935842014-06-11T09:29:02.416-07:002014-06-11T09:29:02.416-07:00I'll always remember her "super winks&quo...I'll always remember her "super winks", the very quick and fleeting smile and a double eye wink! I always laughed and she would usually do it again :)<br />And of course, the super fun "Auntie/Gabby" sleepovers in the hospital! <br />Auntie Julie<br />xoxo<br /><br />The Ross Familyhttps://www.blogger.com/profile/10717029491804967543noreply@blogger.comtag:blogger.com,1999:blog-450190796935126159.post-55143350400498028392014-06-08T21:38:05.147-07:002014-06-08T21:38:05.147-07:00Thank you for sharing such wonderful memories and ...Thank you for sharing such wonderful memories and thoughts about our beautiful girl Gabrielle. I hung on to every word in everybody's post and it filled me up with such peace and love. There is nothing as healing as hearing that your little girl who faced such adversity and whose life was much too short, is not forgotten in the hearts of others. We miss her terribly and her spirit is alive in all of us and I am so grateful that she is alive in the hearts and minds of our dear family and friends. Thank you and much love to you all. Amy Rosshttps://www.blogger.com/profile/16115127555630876983noreply@blogger.com