Gabrielle's lungs just can't get enough oxygen to her body on their own, or even with the 2L of oxygen we have set up for her at home. Her lungs are clear, her passages are clear, but we think it's her I-Cell lungs that are causing her the increasing difficulties.
After getting assessed at Peace Arch Hospital near our house, the emergency doctor ambulanced her back to BC Children's where she and I have been working with the doctors and nurses to find the magic cocktail of treatments and meds. Bronchodilating nebulizers seem to be doing the trick for now, and they added a new antibiotic.
We're back in the oncology ward (just now) and I write this as Dana (another amazing nurse here) does her initial assessment of Gabrielle. All for now.