April 13th, 2013
a happy, busy 2 1/2 year old girl
We went and saw your opthamolgist at BCCH and you are in need of your first pair of glasses. Since our last appointment your eyes have gotten significantly worse and you are working very hard to focus so that you can see properly. Your cousin Anna really wants to come and help you pick out a pair of glasses and she even agreed to wear her own pair so that you don't feel bad about it. I think you are going to look way too stinkin' cute with your new shades on! I just hope you don't try and rip them off everytime we put them on you. The doctor wants you to wear them all day long!
You had your first trial run in a walker and we were so proud of you. You were very nervous about the whole sensation of walking and I think it scared you a little bit. By the end of the session, you managed to smile and I know once you get used to it you will love the freedom of roaming around the house. Our biggest challenge with you at this time is providing stimulating, social experiences and because you have no mobility in your life you get very frustrated. I can hardly blame you sweet girl.
Tomorrow we go and see your neurologist and I'm hoping that they'll take you off of your seizure medication. You've had no signs of any seizures since your hospitalization in January, and deep down I know that you don't need it. It would be nice to slowly get you off most of your meds.
The flu has gone through myself and the boys this past week and so far we have managed to keep you, Dad and Jonathan healthy! I hope you don't catch this nasty stomach bug that has left me, James and Michael throwing up and feeling so weak. I've been doing my best to quarantine the boys downstairs but it is impossible to keep them away from you.
(I wrote this last week and since I've written this update, you have gotten sick. We've had some stressful nights helping you with your breathing. A reminder once again, at how quickly things can change. You seem to be on the mend but it always pains me to watch you struggle).
|Morning walk with your little 'twin' brother.|