Wednesday, January 30, 2013

RIP sweet Julian

There are no words when it comes to losing a child and whenever an I-cell child gains their angel wings it hits so close to home.  Julian lost his battle to I-cell and I am so deeply saddend. Please give a prayer to this beautiful family so that they can find peace and strength in such a difficult time.

RIP sweet Julian.  You fought so hard and were loved by everyone whose lives you touched.
September 9, 2011 - January 29 2013. 


  1. Thank you Amy for sharing this post. The last few days have been any mum's worst nightmare. Meeting funeral directors, choosing flower arrangements, choosing a casket and deciding what to do with Julian's body. Writing his eulogy, dealing with our own intense grief as well as the grief of our family. I lie in bed tonight fully aware that I won't sleep, for I know tomorrow I see my sweet sweet boy for the last time, and say goodbye to him so publicly. The tears keep flowing, and the only time I feel normal is for a split second when I wake up, before I remember Julian has left us. Why does life have to be so cruel? He was so pure and innocent, he deserved so much better. It feels like forever since I held him and I miss him like crazy. What I would give to see that smile, to kiss his forehead, to cuddle him one last time. Antonella xxx

  2. Oh Antonella. Your words have left me in tears as I cannot imagine the pain you are going through and I know one day, I will be in your shoes and grieving the loss of my own daughter. There have been so many times when I have come to write back to you but I am lost for words. The only comfort that I have in any of this is that when our babies pass they will be free of this dreadful disease and will no longer suffer. I hope you can find some peace in the days to come and remember that you did an amazing job with your son. He chose you to be his mamma and he is so proud of the life you gave him. I am so thankful that we got to be mothers to amazing little souls as they filled me up with more life then I ever thought possible. Sending you love and strength Antonella.